{"id":10202,"date":"2024-12-03T09:43:15","date_gmt":"2024-12-03T13:43:15","guid":{"rendered":"https:\/\/celebritemag.com\/?p=10202"},"modified":"2025-05-08T09:48:16","modified_gmt":"2025-05-08T13:48:16","slug":"stephanie-desir-disability-rights-haiti","status":"publish","type":"post","link":"https:\/\/celebritemag.com\/en\/stephanie-desir-disability-rights-haiti\/","title":{"rendered":"When St\u00e9phanie D\u00e9sir Sheds Light on the Lives of People with Disabilities"},"content":{"rendered":"<p class=\"\" data-start=\"61\" data-end=\"518\">On this <strong data-start=\"69\" data-end=\"119\">International Day of Persons with Disabilities<\/strong>, celebrated every <strong data-start=\"138\" data-end=\"152\">December 3<\/strong>, the outcry of <strong data-start=\"168\" data-end=\"187\">St\u00e9phanie D\u00e9sir<\/strong> echoes as an urgent call to collective awareness. Now 33 years old, St\u00e9phanie suffers from <strong data-start=\"279\" data-end=\"318\">inflammatory polyradiculoneuropathy<\/strong>, a debilitating neurological condition. Despite her resilience in the face of daily challenges, she confronts a system that seems to ignore the realities of people with reduced mobility in <strong data-start=\"508\" data-end=\"517\">Haiti<\/strong>.<\/p>\n<p class=\"\" data-start=\"520\" data-end=\"828\">St\u00e9phanie denounces not only the <strong data-start=\"553\" data-end=\"592\">discrimination and social exclusion<\/strong> faced by people with disabilities but also the <strong data-start=\"640\" data-end=\"676\">ineffectiveness of state actions<\/strong>. <em data-start=\"678\" data-end=\"809\">\u201cEvery year on December 3, conferences are organized, but nothing changes on the ground. It\u2019s all words with no concrete action,\u201d<\/em> she says bitterly.<\/p>\n<p class=\"\" data-start=\"61\" data-end=\"339\">She urges the authorities to move beyond speeches by implementing <strong data-start=\"127\" data-end=\"149\">inclusive policies<\/strong>, <strong data-start=\"151\" data-end=\"180\">accessible infrastructure<\/strong>, and <strong data-start=\"186\" data-end=\"218\">adequate healthcare services<\/strong>. <em data-start=\"220\" data-end=\"329\">\u201cWe don\u2019t want to be forgotten by society. We deserve a dignified life, proper care, and real recognition,\u201d<\/em> she adds.<\/p>\n<p class=\"\" data-start=\"341\" data-end=\"724\">Despite her efforts, <strong data-start=\"362\" data-end=\"375\">St\u00e9phanie<\/strong> is still waiting for a response from the State to her letters requesting support for <strong data-start=\"461\" data-end=\"481\">treatment abroad<\/strong>, as her illness is incurable within the Haitian medical context. Her case illustrates the <strong data-start=\"572\" data-end=\"620\">desperation of many people with disabilities<\/strong>, who are often left behind in a country where access to healthcare and infrastructure remains a luxury.<\/p>\n<p class=\"\" data-start=\"726\" data-end=\"1124\">This <strong data-start=\"731\" data-end=\"781\">International Day of Persons with Disabilities<\/strong> must be an opportunity to <strong data-start=\"808\" data-end=\"847\">turn promises into concrete actions<\/strong>. St\u00e9phanie, like so many others, is not asking for charity, but for the <strong data-start=\"920\" data-end=\"962\">fundamental right to live with dignity<\/strong>. Her voice is a powerful reminder of the urgent need for change \u2014 so that people with disabilities in Haiti can finally enjoy their rights and live with dignity.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>On this International Day of Persons with Disabilities, celebrated every December 3, the outcry of St\u00e9phanie D\u00e9sir echoes as an urgent call to collective awareness. Now 33 years old, St\u00e9phanie suffers from inflammatory polyradiculoneuropathy, a debilitating neurological condition. Despite her resilience in the face of daily challenges, she confronts a system that seems to ignore [&hellip;]<\/p>\n","protected":false},"author":23,"featured_media":10203,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jnews-multi-image_gallery":[],"jnews_single_post":{"subtitle":"","format":"standard","override":[{"template":"1","parallax":"1","fullscreen":"1","layout":"right-sidebar","sidebar":"default-sidebar","second_sidebar":"default-sidebar","sticky_sidebar":"1","share_position":"float","share_float_style":"share-normal","show_share_counter":"1","show_view_counter":"1","show_featured":"1","show_post_meta":"1","show_post_author":"1","show_post_author_image":"1","show_post_date":"1","post_date_format":"default","post_date_format_custom":"Y\/m\/d","show_post_category":"1","show_post_reading_time":"0","post_reading_time_wpm":"300","post_calculate_word_method":"str_word_count","show_zoom_button":"0","zoom_button_out_step":"2","zoom_button_in_step":"3","show_post_tag":"1","show_popup_post":"1","number_popup_post":"1","show_post_related":"1","show_inline_post_related":"1"}],"image_override":[{"single_post_thumbnail_size":"crop-500","single_post_gallery_size":"crop-500"}],"trending_post_position":"meta","trending_post_label":"Trending","sponsored_post_label":"Sponsored by","disable_ad":"0"},"jnews_primary_category":[],"jnews_social_meta":[],"jnews_override_counter":{"view_counter_number":"0","share_counter_number":"0","like_counter_number":"0","dislike_counter_number":"0"},"footnotes":""},"categories":[1304],"tags":[1335],"class_list":["post-10202","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-society","tag-stephanie-desir-en"],"_links":{"self":[{"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/posts\/10202","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/users\/23"}],"replies":[{"embeddable":true,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/comments?post=10202"}],"version-history":[{"count":1,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/posts\/10202\/revisions"}],"predecessor-version":[{"id":10206,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/posts\/10202\/revisions\/10206"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/media\/10203"}],"wp:attachment":[{"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/media?parent=10202"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/categories?post=10202"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/celebritemag.com\/en\/wp-json\/wp\/v2\/tags?post=10202"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}